Thu | Apr 25, 2019

Epilepsy association turns to crowd funding to assist persons unable to buy medication

Published:Sunday | January 20, 2019 | 11:59 AM
Executive Director of the Jamaican Epilepsy Association Joy McHugh

The Jamaican Epilepsy Association has partnered with The Jamaica National Group to raise funds via its ISupportJamaica.com platform to assist persons suffering from the illness with buying medication.

The epilepsy association hopes to raise US$2,000 and, will use all funds to assist members of the Jamaica Epilepsy Association with medication.

Joy McHugh, executive director of the Jamaican Epilepsy Association, explained that the cost of medication can be expensive, pointing out that the cost for two to three, or even four to six different combinations of medications, ranges from $12,000 to $45,000 monthly, per person.  Consequently, many persons living with the disease have difficulty purchasing their medication.

“In Jamaica, it is hard for persons with epilepsy to gain employment,” she pointed out. Further, McHugh said in some instances, "once it is known that you have epilepsy, some employers lose confidence in the individual".

Acknowledging the challenges of persons living with the disease, Nora Perez founded the association in 2002, to assist in addressing some of the issues.

“Our mission is to improve the quality of life of persons in Jamaica who are living with epilepsy,” McHugh said.

She stated that interested persons can contribute to the initiative, under the Jamaican Epilepsy Association Member Care Project, which is mounted on the ISupportJamaica crowd funding platform.

Phillip Lindsay, operations officer of ISupportJamaica, at the JN Group, said that crowd funding is beneficial, as it is a positive method to gain exposure for projects, or business ventures, which need to raise financial support.

Lindsay also explained that contributing to any initiative via the platform is simple and secure. Interested persons can donate by visiting the ISupport Jamaica.com platform at www.isupportjamaica.com, click on the project; and then click the “Fund Project” button.

In addition, donations can also be made via JN Live e-banking; and at any JN Branch or MoneyShop; as well as, through inter bank transfers.

The Jamaican Epilepsy Association is a registered non-profit organisation, funded by donations and fundraising events. Its mission is to improve the lives of persons with epilepsy in Jamaica; and, to make a positive difference, through awareness about epilepsy and first aid training.

It is the only one of its kind in the English-speaking Caribbean.

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